Yesterday, while eating Arby sandwiches, Marcy and my brother and I were having a quick discussion about when we first noticed my mother's dementia. My brother said he thought it began when she forgot whether she had eaten a meal or not.
"Nooo!! That's been recent!"
"When she drove home and forgot to turn off the car?"
I said that in hindsight, when Grandma would get so annoyed at having to choose from a menu, that that should have been some indication that things weren't quite right. And then she started wearing the same three outfits over and over despite her full closet of clothes. I think decision making issues had started about that time...
Marcy and I both remembered the
uncharacteristic clutching to her monetary assets when we both criticized her for writing checks left and right to unsubstantiated "charity" groups who would COME TO THE HOUSE WEEKLY TO PICK UP THE CHECKS! There was a definite collapse of her reasoning system at the check writing and then her lashing out at us with "That's MY money! I can do what I like!" was completely out of character.
Yesterday at church I greeted people who knew Grandma from her active church days and they all asked about her.
"She's hanging in there... Not great. Not moving around. She's cheerful."
"Grace (my mother) was always cheerful. Isn't that nice that that has remained."
This visit I notice the sounds that Grandma makes. She moans and grunts most of the night but I have determined that she isn't uncomfortable and am willing myself to ignore it and try to sleep through it myself. In the daytime, when she is awake, she starts her normal loops of conversation, commenting on whatever blouse, sweater, shirt that anyone is wearing when they walk into her room.
"What a pretty blouse (sweater, shirt) you're wearing. Did you get that here?"
I can walk out of Grandma's line of vision to pick up a wash cloth or something and when I step back into her sight she comments again about the same blouse (sweater, shirt). For the past 10 years or so, with doctors or men she will comment on their shirts or ties. On one of her last visits to her doctor when she just sat blankly and said nothing about his tie, he sympathetically smiled at her and asked her himself if she didn't like his tie... It was such a common refrain from his patient of some 25 years and he seemed sad that she didn't have the energy to even notice.
I've been wearing things out of Grandma's closet myself and yet she still says,
"What a pretty blouse you're wearing. Did you get that here?"
"It's yours Grandma."
"It is? Then you can keep it because I don't need it anymore."
Other sounds...
Whenever Marcy or I change Grandma's diapers she goes into a musical crescendo of sounds up and down the scales.
"E-hee-hee-hee-hee-hee-hee! Ooh-hoo-hoo-hoo-hoo-hoo-hoo-hoo! Ah-ha-ha-ha-ha-ha-ha-ha! Oh-ho-ho-ho-ho-ho-ho-ho-ho!"
Not a real laugh though it sometimes dissolves into laughter, especially when I mimic her.
"Grandma, what does that mean? What are you saying? Why do you make that noise? What does all the noise mean?"
She smiles in mirth as if she has played a big joke on us.
"I think you just like to hear yourself, right Grandma?"
"Does it MEAN anything, Grandma?"
"It means... it means... I'm happy? It means I'm happy."
I love this answer and actually make her say it to me whenever I'm changing the diapers.
"Well, I'm glad YOU'RE happy because I'm NOT happy about cleaning up your diapers!"
But I say it lovingly and I don't really mind the messy diaper changing with all the background noise Grandma makes.
As dementia goes, Marcy and I are rather relieved at the course my mother's is taking so far.
(Me wearing Grandma's blouse and she with my scarf wrapped around her)
She is happy and that knowledge makes my throat tighten.